This Mind of Mine

A quiet morning view of a sandy beach with gentle waves rolling in under a cloudy blue sky. In the distance, a row of coastal buildings lines the shore, with green hills behind them.

Life with Usher syndrome is a life of navigating a world that wasn’t made for me. It means a life of peaks and troughs.

A Love Letter to USHthis VA 2025

A photo frame displays a group of ten young women in bright pink USHthis shirts and hoodies standing outdoors with their arms around each other. The frame is placed on a bookshelf with the books out of focus in the background.

It’s rare that I’m at a loss for words but when it comes to describing my experience at USHthis VA 2025, speechless is exactly how I feel.

An Annual Appointment

Hospital wall signage with a yellow background and black text reading 'Ophthalmology Department'

For most people, 14th February is associated with Valentine’s Day. For me, the significance has shifted.

The 2024 Cure Usher Ball

Large, light-up letters reading 'Cure Usher' in front of a black curtain background.

I always seem to be a week or two (or more!) behind when it comes to posting about events, but better late than never!

USHthis UK Summer Camp 2024

All 8 camp mentors standing in a row on the grass, with Lake Windermere in the background. From L-R the mentors are Lilly, Ethan, Sofy, Marni, Anna, Ava, Gavin and Asia.

On Sunday 4th August, I travelled from South Yorkshire to Windermere for the annual UK USHthis Summer Camp.