This Mind of Mine

Life with Usher syndrome is a life of navigating a world that wasn’t made for me. It means a life of peaks and troughs.
Connecting Continents: Australia 2025

Just a few short weeks after returning from the USA, I was flying home from the inaugural UsherKids Australia Youth Camp.
A Love Letter to USHthis VA 2025

It’s rare that I’m at a loss for words but when it comes to describing my experience at USHthis VA 2025, speechless is exactly how I feel.
An Annual Appointment

For most people, 14th February is associated with Valentine’s Day. For me, the significance has shifted.
The 2024 Cure Usher Ball

I always seem to be a week or two (or more!) behind when it comes to posting about events, but better late than never!
USHthis UK Summer Camp 2024

On Sunday 4th August, I travelled from South Yorkshire to Windermere for the annual UK USHthis Summer Camp.
An Overdue Introduction!

If you’ve stumbled across this website or blog post, let me take a moment to welcome you!