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The Blog

This Mind of Mine

Life with Usher syndrome is a life of navigating a world that wasn’t made for me. It means a life of peaks and troughs.

A photo frame displays a group of ten young women in bright pink USHthis shirts and hoodies standing outdoors with their arms around each other. The frame is placed on a bookshelf with the books out of focus in the background.

A Love Letter to USHthis VA 2025

It’s rare that I’m at a loss for words but when it comes to describing my experience at USHthis VA 2025, speechless is exactly how I feel.

Hospital wall signage with a yellow background and black text reading 'Ophthalmology Department'

An Annual Appointment

For most people, 14th February is associated with Valentine’s Day. For me, the significance has shifted.

Large, light-up letters reading 'Cure Usher' in front of a black curtain background.

The 2024 Cure Usher Ball

I always seem to be a week or two (or more!) behind when it comes to posting about events, but better late than never!

The podcast

Listen in: journeys & conversations

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