Support - A Deafblind Designer

Help & Support

Usher syndrome is something that nobody should have to process alone. It can be a scary diagnosis to receive, but there are thousands of other people that have been through the same journey, so you never have to feel alone. Below is a list of just some of the charities and support services that are available to help you and your loved ones on your journey.

Usher Kids UK

Founded by the amazing Chloe Joyner (the parent of a child with Usher syndrome) Usher Kids UK are on a mission to provide information, support, connections and advocacy to children, young people and families who are affected by Usher syndrome.

Deafblind UK

Since 1928, Deafblind UK have helped people with deafblindness to live their life to the fullest by building confidence and independence. They also offer practical, emotional and technological support.

Cure Usher

Founded by Jo Milne and supported by amazing patrons such as Laura Norton and Mark Jordon, Cure Usher are on a mission to increase awareness and raise funds for research into a cure for Usher syndrome.

Ava’s Voice

Founded by the incredible Carly Fredericks, Ava’s Voice is committed to empowering youth with Usher syndrome by educating families and school communities on the needs of those living with the condition.

Usher Kids Australia

The mission of Usher Kids Australia is to empower the Usher community through support, connection and knowledge; to help children and families living with Usher syndrome love their lives.

About me

My name’s Asia

Nice to (sort of) meet you.

I was born severely deaf, given bilateral hearing aids at 11 months old, and was later diagnosed with Usher syndrome at the age of 19, when my eyes joined the party with their own issues.

I’m not an expert in anything, not by any stretch of the imagination. I’m just a young woman with opinions and experiences that will hopefully be of use to those living with Usher syndrome and their loved ones.